Ankylosing spondilitis society in Denmark

Ankylosing spondylitis society in Denmark: Gigtforeningen for Morbus Bechterew
Founded in 1973

v/Torben Jørgensen
    Hjortøgade 1, 4.tv.
    DK - 2100 København Ø
    phone (+45) 6168 1180
    eMail: torben.jorgensenpc.dk
Internet homepage: www.bechterew.dk

Landsformand (Chairman)	Torben JØRGENSEN (address see above)
International contacts	Dr. Jon ERLENDSSON (consultant rheumatologist), Grønningen 10, DK-8700 Horsens, Tel. (+45) (+45) 75 65 78 98, eMail: jon.erlendssonstofanet.dk
Membership 1. Jan. 2007	1182 paying members, including 95% AS sufferers
Local branches	10 local branches with regular exercises.
Newsletter	"MB-Bladet"
Period of appearance	4 per year
Further publications	"Morbus Bechterew" (new patient guidebook, October 2006) "Bilkørsel og Bechterew" (Car Driving with Ankylosing Spondylitis) Personal Morbus Bechterew identification card provided with a picture in profile Video (6 min) for general practitioners and physiotherapists produced with the help of K. STENGAARD, professor of rheumatology, demonstrating signs of early AS in order to reduce the time delay between onset and the diagnosis. This video can also be seen in our website under www.bechterew.dk
Important events in 2007	Annual meeting for patients and their families in May. You are welcome to contact us for further information
Membership fee	Fee to the local branch ca. 150 Danish kroner per year
Remarks	In 2006 our grant (”Bechterewprisen”) was awarded to Ole Birger PEDERSEN for his twin studies on ankylosing spondylitis and psoriatic arthritis. Information on the special problems associated with fractures of the spine in ankylosing spondylitis patients sent to all hospital emergency rooms and the two largest life-saving services in Denmark. "Bilkørsel og Bechterew" (Car Driving with Ankylosing Spondylitis) has been delivered to all our members. The booklet has been sent free of charge to all hospital emergency rooms, all departments of rheumatology, all hospital occupational therapies, and all privately practising rheumatologists in Denmark. It was meanwhile reprinted in English, Portuguese, Japanese, Czech, and German language by the AS societies in these countries.

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