Associação
Brasileira de Portadores de Espondilite Anquilosante
(ABRESPAN)
Founded in December 2004
| Presidente | Dr. Tirso de Salles MEIRELLES, São Paulo – AS patient |
| Vice-Presidente | Adriano Macedo FÉLIX– AS patient |
| Tesoureiro (Treasurer) | Eduardo de Souza MEIRELLES - rheumatologist |
| President of Scientific Board | Dr. Percival D. Sampaio BARROS – Rheumatologist |
| International contacts | Dr. Eduardo de Souza MEIRELLES, São Paulo (address as given above) |
| Membership 1. Jan. 2010 | 130 members, most of them AS patients |
| Local branches | 1 local branch with weekly exercises |
| Newsletter | being built up |
| Further publications | 1.
Translation of NASS Guidebook for Patients published in www.espondilitebr.hpg.com.br
and in www.emedix.com.br
2. Portuguese validation of BASDAI and BASFI indexes – in way of publication – (permission obtained by Dr. Célio Roberto Gonçalves) 3- Dr. Muhammad Asim Khan: "Ankylosing Spondylitis – the facts" in way of translation – (permission obtained by Dr. Percival D. Sampaio Barros) 4- AS Diagnosis and Treatment Brazilian Guidelines published in Brazilian Medical Association (www.amb.org.br), Medical Federal Board (www.portalmedico.org.br) and Brazilian Rheumatology Journal (www.reumatologia.com.br) |
| Important events in past and coming year | Monthly Lecture and Meeting with AS Sufferers in GRUPARJ (Rio de Janeiro State Self-Help Arthritic Group) |
| Membership fee | Being studied by the Association |
| Remarks | 1-
Existence of a National Virtual AS Group created by our Vice-President
Rodinei Santana Guimarães before ABRESPAN foundation that has being
of great help and support for the Association 2- Low income of most ABRESPAN members leading to initiate the Association only with donations 3- Brazilian Rheumatology Society support and recognition lending their address for legal registration 4- Temporary absence of a physical place for the Association |
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