| Car
driving with ankylosing spondylitis |
| Investigator:
Dr. Jon Erlendsson, consulting rheumatologist of AS society in Denmark
(and AS sufferer), Horsens Sygehus, Horsens, Denmark, in cooperation with
scandinavian car producers |
| Results published in the
booklets ”Bilkørsel og Bechterew” (Danish edition appeared in 1997,
2nd edition in 2000) and "Car Driving with Ankylosing Spondylitis" (English
edition published in 1998 with support of ASIF and NASS). A Portuguese
edition was published in 1999, a Japanese edition in 1999, a Czech edition
in 2002, and a German edition (supplemented with additional contributions
on the subject) in 2003. |
| Comparison
of HLA-B27 negative versus positive patients with ankylosing spondylitis |
| Investigator:
Prof. Dr. Ernst Feldtkeller, vice president ASIF, München, in cooperation
with Prof. Dr. M. Asim Khan (Cleveland, Ohio, USA), Prof. Dr. Désirée
van der Heijde and Prof. Dr. Sjef van der Linden (University of Maastricht,
Netherlands), and Prof. Dr. Jürgen Braun (Herne, Germany). |
| Method: A questionnaire
was published in the in June 2000 newsletters of the AS societies in Germany
and Austria. 1080 AS patients responded. |
Scientific publication of
results: Feldtkeller E, Khan MA, van der Heijde D, van der Linden S, Braun
J: Age at disease onset and diagnosis delay in HLA-B27 negative vs. positive
patients with ankylosing spondylitis. Rheumatology International 23 (2003)
61–66.
Patient-adapted publications
appeared in newsletters of AS societies in Germany, Austria and Belgium/Flanders. |
| Survey
on vertebral fractures in patients with ankylosing spondylitis |
| Investigators:
Prof. Dr. Ernst Feldtkeller (vice president ASIF, München) and Debby
Vosse M.D. (University of Maastricht, Netherlands) in cooperation with
Jon
Erlendsson M.D. (consulting rheumatologist of AS society in Denmark, Horsens,
Denmark), Piet Geusens M.D. (Professor of Rheumatology,
Limburg University Center, Diepenbeek, Belgium and University of Maastricht,
Netherlands) and Sjef van der Linden M.D. (Professor of Rheumatology, University
of Maastricht, Netherlands). |
| Method: Questions on vertebral
fractures were included in the questionnaire published in the in June 2000
newsletters of the AS societies in Germany and Austria (see above). 1080
AS patients responded. A second questionnaire with detailed questions on
vertebral fractures to be answered only by patients with a history of a
vertebral fracture was printed in the membership journals of the AS societies
in Germany and Denmark in June 2001. 77 patients responded. X rays of some
of the fractures could be inspected. |
The scientific results of
step I have been published in: Feldtkeller E, Vosse D, Geusens P, van der
Linden S: Prevalence and annual incidence of vertebral fractures in patients
with ankylosing spondylitis. Rheumatology International 25 (2006) 234–239.
The scientific results of
step II have been published in: Vosse D, Geusens P, Erlendsson J, Feldtkeller
E, van der Linden S: Clinical Vertebral Fractures in Patients with Ankylosing
Spondylitis. Journal of Rheumatology 31 (2004) 1981–1985.
A patient-adapted publication
of the result of both steps appeared in March 2005 issue of "Morbus-Bechterew-Journal",
the journal of AS society in Germany, Translations have been published
in the newsletters of the AS societies in Belgium/Flanders, Denmark, Slovenia
and USA. |
| Survey
on efficacy and side effects of NSAID therapy of AS |
| Investigator:
Jane Zochling (Herne) in cooperation with Martin Bohl-Bühler (Brandenburg
and Berlin), Prof. Dr. Ernst Feldtkeller (vice president ASIF, München),
and Prof. Dr. Jürgen Braun (Herne, Germany). |
| Method: Questions on the
efficacy and side effects of NSAID treatment were included in the questionnaire
published in the June 2000 newsletters of the AS societies in Germany and
Austria. 1080 AS patients responded. 102 patients with disc prolapse
served as a control group. |
Scientific publication of
results: Zochling J, Bohl-Bühler MH, Baraliakos X, Feldtkeller E,
Braun J. Non-steroidal anti-inflammatory drug use in ankylosing spondylitis
– a population-based survey. Clin Rheumatol 2006;25:794-800.
A patient-adapted publication
o the result appeared in March 2006 issue of "Morbus-Bechterew-Journal",
the journal of AS society in Germany, |
| Survey
on the prevalence of common infections in patients with AS |
| Investigator:
Jane Zochling (Herne) in cooperation with Martin Bohl-Bühler (Brandenburg
and Berlin), Prof. Dr. Ernst Feldtkeller (vice president ASIF, München),
and Prof. Dr. Jürgen Braun (Herne, Germany). |
| Method: Questions on common
infections were included in the questionnaire published in the June 2000
newsletters of the AS societies in Germany and Austria. 1080 AS patients
responded. 102 patients with disc prolapse served as a control group. |
Scientific publication of
results: Zochling J, Bohl-Bühler MH, Baraliakos X, Feldtkeller E,
Braun J. The high prevalence of infections and allergic symptoms in patients
with ankylosing spondylitis is associated with clinical symptoms. Clinical
Rheumatology 2006;25:648-658, with corrections in Clinical Rheumatology
2006;25:659
A patient-adapted publication
o the result appeared in June 2006 issue of "Morbus-Bechterew-Journal",
the journal of AS society in Germany, |
| Survey
on disease triggers of ankylosing spondylitis |
| Investigator: Jane
Zochling (Herne) in cooperation with Martin Bohl-Bühler (Brandenburg
and Berlin), Prof. Dr. Ernst Feldtkeller (vice president ASIF, München),
and Prof. Dr. Jürgen Braun (Herne, Germany). |
| Method: Questions on possible
triggers of the disease were included in the questionnaire published in
the June 2000 newsletters of the AS societies in Germany and Austria. 1080
AS patients responded. 102 patients with disc prolapse served as
a control group. |
| Scientific publication of
results: Zochling J, Bohl-Bühler MH, Baraliakos X, Feldtkeller E,
Braun J. Infection and work stress are potential triggers of ankylosing
spondylitis. Clin Rheumatol 2006;25:660-666 |
